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Question: Biopsy of a few nodules of my left side tongue states mucosal neuroma. This is associated with multiple endocrine neoplasia (MEN) syndrome which can lead to thyroid cancer and adrenal pheochromocytoma. This is a very rare disease and in Malaysia docs haven’t seen this on the tongue before. Docs have now ruled out MEN as urine catecholamines and ultra sound shows normal. No family history of this. Can mucosal neuroma appear without MEN? Can I get MEN in future even I don’t have it now because of mucosal neuroma? Will my son and husband gets infected? Angie

Answer: Dear Angie,

When mucosal neuromas are asymptomatic they do not need treatment but regular follow ups are important due to the potential for thyroid or adrenal cancer.

People cannot be infected with mucosal neuromas. When MEN is present, is due to genetic factors and those can be passed along to children.

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